The Minnesota Twins have been kind enough to donate a tour of Target Field to Kaley’s fundraiser. The tour is at 6:30pm on Wednesday September 15. Please contact me (Andy) if you’re interested in attending. Cost is $50 / person and $42 of that is tax deductible.
Wow, PT is expensive. To have a traditional physical therapist visit Kaley twice a week and a non-traditional therapist visit her every other week, comes out to nearly $1400! Currently we have about $5K set aside for therapies but that will last less than 3 months! We so need this fundraiser.
Kaley got fitted for her new custom wheelchair last week. It works and looks great. I’ll leave guessing the color up to the reader. I’ll give you 1 guess.
I haven’t scheduled the PT yet as I was overseas for work last week but it’s only todo list this week. Kaley’s been making small improvements physically and mentally on her own however.
While I’m not sure how attainable some of these goals are, the 6 month goals the PT person laid out for Kaley are as follows:
* Consistent 1 person transfers
* Stand with minimal assistance for up to 30 minutes
* In and out of bed with minimal assistance
* walk with minimal assistance
* more outings with family in their own cars
Seems like goals 1 and 5 are very attainable. 2 through 4 seem much more challenging. Not to say Kaley can’t do it. I would never say that, but they seem like stretch goals.
Got a report from the group home folks that Kaley has started to not support her weight and get very frustrated and confused as to what she’s supposed to do when doing pivot transfers. Not always but its happened a couple of times. That’s enough for a couple of the staff members to start using the hoyer lift to transfer her. This will only rob her of even more strength. So I’m working on getting some level of PT going now. I need to figure out how to make our funds last until our fundraiser. PT costs about $1000 per month, so this is going to take some doing.