After the recent events of our past few blogs, I can only imagine how many people are searching for normal. It made me evaluate my own life, and the ups and downs of the struggles I face with my medical issues. Of course, I can’t stop wondering about or wishing what “a normal” life would be like…enviously looking around at our friends and those in our peer group and what we are not able to include in our lives.
But then, (I don’t even require the icy cold bucket of water over my head), I realize that there is no normal. It’s one of life’s great fallacies. What some people can have as part of their lives, are not meant to be a part of some others. What some have to fight for, others have never even fathomed. My core feelings of sadness that I’m 31 years old, and have known before Andy and I even got married that we could not have own own children, has at times made me feel envious. And then I view a tragedy unfold blocks from my home, and feel my husband hold me tight in his arms. Our family is still intact today. We are blessed and lucky.
I am struggling right now, wishing my blood work would even out. First, one organ seems to be “upset”, and then the other. It’s tough to make sense of , as every one I talk to has a slightly different opinion on what’s going on. Most frustrating, is that many of my regular care team is simply on vacation. The usual complaint, that they can take a vacation from their jobs, but the patient sure doesn’t get to take a vacation from the chronic illness. It just makes me surly.
I haven’t been feeling well the past couple of days — fairly queasy on the back roads — and finally following the nausea freeway to the place where people start throwing up green icky stomach acid. Last night and today were the worst. Andy had free tickets to the Vikings pre-seaon game, and as I’d never been, I REALLY wanted to give it a try. Well, it was a bit of a struggle getting there, and we stayed through Half-time. It was good enough for me, and as Andy’s told me before, “You see more on TV”. After being way up top at the Dome, I’d definitely agree! It was fun to go, but I figured it was good to go before I was sorry.
Thursday night, was quite rotten, an Azithromycin night where I was nauseas before the Anti-Bs — horrid during –and left with nasty diarrhea and erping for the rest of the night. Once again, Andy was my hero, and took care of me.
Maybe the sun will shine my way tomorrow! After all, I have a Cervical BBQ to start planning! Whatcha think…Steak sauce? Ketchup?? I can’t help but joke!