The last few months have been tough. Between several really bad UTIs, a fresh bout with c-diff (possibly two), and insurance refusing to cover an apparently crucial wake up med (Provigil), we’ve had a rough month. Luckily we seem to be starting an up swing.
After the insurance refused to pay for provigil, we decided to try life without it. Since Kaley’s improvement during the summer, maybe she didn’t need it anymore. We were wrong. That drug was having a profound affect on Kaley. These drugs are about $10 a day (not super expensive as far as non-generic drugs are concerned) so paying for these out of pocket for a long period of time is out of the question. We’ve got about a 2 month supply at this point. Provigil’s manufacturer has a reimbursement assistance program that we’ve applied with. Basically the manufacturer volunteers to try to help with the appeals process for patients who have been denied their prior authorization (i.e. exception) with their insurance company. They claim to have about a 60% success rate, so that’s pretty good. I have no idea how long that will take.
In any case, Kaley’s been responding more like the Kaley from early summer (pre-break through) lately. This is an improvement over the past couple of months. Hopefully this trend continues. Kaley will be spending Thanksgiving at my parents’ house. Then sometime after that (possibly the next day) we’re going to go back there to bake Christmas cookies (always one of Kaley’s favorite things to do over the holidays). At some point, we’ll be bringing her back home to help put up the Christmas tree at our condo. I didn’t bother decorating last year, as I just didn’t have the motivation to do so. Having Kaley help decorate will certainly help that this year.